Wednesday, May 30, 2012



Today is World MS day.

I have had MS for 2 years now and have been very lucky not to have had another relaps.
The medication seems to be working out for me. For that, I am grateful.
For those of you that don't know or don't quite understand, MS is an autoimmune disease that attacks the brain and spinal cord. You can have any number of symptoms and every person with MS is different.
As a matter of fact, every relaps can be different.

It is a big fat disease of unknown. It is a big fat deal.

You never know when it will strike or how hard it will hit you. You never know what is going to be affected next. I have found that I can't dwell on it too much because it can cause a lot of stress wondering when things will get worse. I prefer to hope that things never will get worse.

MS can cause muscle weakenss, pain, paralysis, blurred vision, double vision or loss of vision entirely. It can cause bladder and bowel incontenence, memorie loss, heat intolerance, fatique, vertigo, depression and a million other things. Basically every thing your brain or spinal cord controles can be affected.

That is a whole lot of possiblities.

For me, MS caused vertigo, double vision, chronic fatique, heat intolerance, random muscle pain, urinary frequency, memory issues and definitely  depression. 
After I went into remission all of those resolved except the chronic fatique, heat intolerance and dizzy spells. That may not sound too bad compaired to what it could be and I defintely know Ive been lucky, but there is always that dread in the back of my mind of what is going to happen next time.

Not everyone with MS is in a wheel chair nor will they necessarily ever be in a wheel chair, but the invisible part of MS is still as debilitating. I think the hardest part of  having an invisible disease is looking so normal on the outside but being so unwell on the inside. To everyone else you may not look sick at all, but inside you never quite feel right.

Like with all diseases I hope for a cure, but for now I am just grateful for the treatment that is out there, the support of family and friends and the ability to spread awarenss.







Tuesday, May 29, 2012

Memorial Day with a Little Fresh Air

This year we did something a little different from the usual BBQ at my parent's house. We decided to go up American Fork Canyon 
and picnic. 
YAY MOUNTAINS!!!


It was such a perfect day and the canyon was so beautiful. 
My brother suggested we head up to Silver Lake and led the way....ok he hauled a** up the road while my dad and the rest of us puttered behind. My poor mom was holding on for dear life due to how bumpy the ride to the lake was. My bladder as well as my equilibrium didn't much appreciate it either but the view was perfect to look upon while eating our picnic. Totally worth the ride. 





Luck for us, my parent are so old that they were able to get a life-time membership to all the national parks for $10. Woot! Looks like there will be a lot of free camping and hiking in our future.